We are two weeks post surgery and she is doing good..she is finally back to herself…she is off of all of her pain medicine..boy has it been a process getting her off of them..we had to slowly wean her from them one dose by one dose. She just looks better now too..her color’s back and she’s not sleeping all time..way more perkier and can stand her ground again....Took her back to the dr this week for weight check..bc she wasn’t eating remember so they prescribed an appetite stimulant..so anyways we have stopped that bc she is eating now..she hasn’t gained any weight in the last week but she hasn’t lost any either so we will take that..We are still working on getting home bound set up for her school…its been kind of a slow process..I thought they were going to get it going before we left but I guess not..but they said hopefully next week it will start back up. It is killing Avery not to go to school…she wants to go soo bad..many times she will say school..or when we pick the girls up from school..she wants to go..
They have been sending homework with the older girls but up until today she has had no interest really..and when I tried to work with her her hand would just shake when she was writing…so we def took a few steps back in that department again…she did that last time too..Her OT had her wear a weighted glove last week to work on it..it seemed to help a little..
Two more weeks to really keep her down..she cant bear weight on that at all for at least a month but Dr.Kim said that after a month she can walk around with her cast on like she did last time if she wants too..She will go to her ortho dr here in Greenville in a couple of weeks where they will xray the hip and make sure everything looks good.
*I am going to try to blog once again in October once a day..why??? 31 for 21…31 days for 21 chromosome bc its Down syndrome awareness month…if u have blog I encourage you to join in…it doesn’t have to be about Down syndrome..just why u are doing it..the posts are not going to be all about Avery…or Down syndrome bc well that is not what our life is all about…its just a small part of Avery..and showing everything else shows that she is just like any other child..she just happens to be blessed with an extra chromosome..;) But Im sure there will be some in there for sure just about Down syndrome…
** I m feeling very guilty for not doing more this year for our buddy walk..I should of did more and I was going to do more but it just crept up on me way to quick…Avery did so good last year..she got third for raising the most money..I guess I have a good excuse though..I was busying taking care of Avery this last month..BUT we are still planning on walking..we would love all of you that are local to come and walk with us..What is the Buddy Walk? A day to celebrate all individuals with Down syndrome and to also promote acceptance and inclusion of people with Down syndrome. It is lots of fun..and the walk itself is only a mile..and its very easy to do..it is on a track..Mark your calendars now..Oct. 6th…
Saturday, September 29, 2012
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2 comments:
That's good to hear that Avery is doing better now and I hope this time passes quickly so she can walk on her cast and get back to school! Don't worry about the Buddy Walk; nothing to feel guilty about! Glad to see you joining on 31 for 21!
So glad Avery is back to herself. I'm sure your Buddy Walk will be just as special even though you didn't fund raise as much this year!
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