Thursday, October 13, 2011

31 for 21: Day 13 Atlantoaxial Instability

Last week Avery went to get her x-rays done on her neck to rule out Atlantoaxial Instability{AAI}. AAI is a separation between the vertebrae of the spine. AAI occurs between the C1 and C2 vertebrae. A normal separation would be under 5mm. I didn’t ask what her separation was..didn’t know sorry!!  But I will ask the other dr when we go. AAI occurs in about 10% of children with down syndrome and between the ages of 3-5 is when it is recommended to get a x-ray to rule it out. Well the nurse called me back today to let me know that Avery's x-rays were abnormal and that the dr couldn’t sign off on them. So he is referring us to the neurosurgeon where she said they will probably do further testing like a MRI. So I really don’t know anymore right now besides that. As soon as I hear something I will let you all know!
I was going to do a write up on it but I found this great write up on another blog that a mom wrote about bc her daughter had it too but hers was pretty serious. I'm praying that Avery’s isn't that bad. If you could please say an extra prayer for Avery!! Please go read the article so you all will know what I am talking about..
http://www.myspecialks.com/2011/08/down-syndrome-and-aaiaoi-and-aap.html

1 comment:

Pam said...

Sending prayers your way....I hope it isn't serious.